
TUESDAY, Feb. 25, 2020 (HealthDay News) -- By the time he was 7 months old, John Michael Crawford had been diagnosed with a rare genetic disorder called tuberous sclerosis, associated with a high risk of developmental delays, including autism.
Early intervention programs are believed to help reduce that risk, but these time- and labor-intensive therapies often aren't available in areas of the United States that aren't close to large medical centers.
The Crawfords, from Benton, Ark., live in such an area.
"There are plenty of families who live in places without access to specialists. It's overwhelming when you get the diagnosis, especially when you can't find specialists that can answer questions and teach you," said John Michael's father, Brandon Crawford.
An ongoing trial for a...